Growing up Kelly had always had problems with feeling tired and pain in her legs.

It wasn't until years later that it was discovered why.


Read Kelly's Story here.

Patient Stories


GS sufferers, carers, family and friends share their personal accounts of what it's like to live with Gitelman Syndrome.

Ellie's partner has Gitelman Syndrome. She explains how the illness doesn't just affect the sufferer physically, but also those around them.


Read Ellie's Story here.

Ellie's Story

Lesley has gone through life not knowing why she was always so tired.

It wasn't until later in life that doctor's diagnosed Gitelmans.


Read Lesley's Story here.

Jayne was only 45 when she died.
Her family didn't realise Gitelman's could kill.
They don't think Jayne did either.

Read Jayne's Story here.

Debbie's family have lived with Gitelman's in many of its members.
As an American, she wants to highlight how it affects people all over the world.

Read Debbie's Story here.