Erica's Story

 

I remember always being sick as a child...or so I thought.

My symptoms included constipation, vomiting and fatigue. My family thought I was just a lazy kid. In high school my symptoms worsened, and I ended up being hospitalized. The doctors had no clue what was wrong with me.

 

Test results showed my potassium and magnesium levels were extremely low.

Weeks later I was diagnosed with Gitelman's Syndrome.

 

I am 30 now. I wake up every morning in pain both physically and mentally. It is a struggle just getting through the day. I feel like I'm trapped in an old, sickly body. Even when lab test results are normal, I feel terrible and nothing really seems to help. I've tried changing my diet...exercising...staying on top of my meds....nothing. I have people who depend on me, and so I try to be as strong as I can. I've come to grips with the fact that the pain is a part of me that I have to live with.

 

It is hard but it is my reality.