Coronavirus COVID-19 advice for Gitelman Syndrome patients

Gitelman Syndrome UK has been in contact with Prof. F Karet in Cambridge, who has provided the following advice for Gitelman/Barrters patients:

  • Anyone with Gitelman Syndrome will be only too aware how easily electrolytes go off with any type of virus or intercurrent illness, so you should follow the government's advice designed for those at risk of Covid19 with underlying health conditions.

  • Very frequent handwashing.

  • Avoidance of touching/close interactions with others.

  • Work from home and stay home when feasible.

  • Avoidance of overcrowded places - though going round the block for a walk and/or the corner shop if you need something would be OK.

  • Get some over the counter vitamin D.

  • Never stop taking medicines unless vomiting makes them impossible to take (this is not a usual feature of Covid19 however). If that does happen go to A&E.

  • Reorder your prescriptions a few days earlier than usual so you don't run out.

  • Ask GP to prescribe for 2 or even 3 months at a time (it's not like your need for meds is going to go away!)

  • If you have an outpatient appointment coming up, it should be possible to do a phone consultation.

It goes without saying that some of the above may be dependent on changing advice and regulations from the Government/authorities (for example, if restrictions are put in place to prevent social movement etc.) which would override the information on this page.

If you are self-isolating, or are under enforced isolation and would like an information notice to put on your front door for deliveries and authorised visitors, we have one you can download here.