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Supporting people affected by Gitelman Syndrome

Because Gitelman Syndrome (often referred to as GS) is such a rare disease, it is possible that most people and doctors are unlikely to have had much experience of it.

 

When patients have first been given their initial diagnosis of the rare Gitelman Syndrome they have often searched the Internet for information, which is often found to contain incorrect advice, or to be very misleading and inadequate.

This site can be used to inform, share, support, and create awareness for those who have been diagnosed, their families and carers, as well as the medical community. It is also intended to provide a support framework so that people who have the condition do not feel so isolated.